Tag Archives: dementia

Children and adults with disabilities are feeling abandoned | The Star

This article is in the Toronto Star so is referring to the situations in Canada, but it could so be elsewhere.

So why are persons with disabilities and many other conditions (of which there are many) so discounted by some who do not have disabilities.

With some it will be ignorance as they will not have been, in many aspects anywhere really near persons with disabilities and do not fully understand what is occurring, what has occurred or could occur. These people where ever they are need to be educated and especially so where these persons are in positions of power and influence. As persons with disabilities have rights as do anyone and as such their rights need to be respected.

With others it will because they are selfish and will always put themselves above others be they be with disabilities or not. With these individuals to alter their beliefs will not be easy, if it is ever possible.

It is therefore that there needs to be regulations and Laws to ensure that the rights of persons with disabilities will always be respected and if they are not there will be easily effected means to ensure they are.

This is not down to special treatment being given, but that to achieve equality more may need to be done to ensure equality is achieved.

Much of this could be done by having essential welfare benefits being available which need to be claimed for.

But not all for benefits will not cater for access issues, be they to be with buildings, services, all forms of transport, work and many more as well as many other issues.

We, who do not have any disabilities take much of what there is for granted and maybe don’t notice that difficulties could arrive, but for some many difficulties will arise and there has to be means which will diminish these difficulties to ensure equality for all.

Source: Children and adults with disabilities are feeling abandoned | The Star


Care workers in England leaving for Amazon and other better-paid jobs | Care workers | The Guardian

I have been forecasting this for many years, but no one was listening, especially the Government and the Government is still not listening.

Amazon and other organisations can afford to offer these salaries of over £13 per hour but the care profession can’t unless a massive increase in funding but brought in, so carers are being paid either the national |Living Wage of £

Social Care has always been insufficiently funded, meaning care workers have not been allowed to earn a salary more in keeping with the care work they do.

But the Government insisted in forcing Local Authorities to accept austerity measures, when there was insufficient areas in which they could make saving without cutting back on essential services. The poor, disabled and the sick depend on all these essential services in order for them to lead reasonable lives. and social care is a necessity for them.

By not having sufficient care staff, persons in need of care are not always receiving good quality care, if at all.

So care workers are having to survive on the National Living Wage of £8.91 or in some instances the Read Living Wage of £9.50 or varying rates in-between.  For people to come into the Care profession the starting rate should be £14.00 per hour and the differentials be maintained in the years to come.

Then the other areas should be looked at

sick pay arrangements

Holiday pay

travel expenses

unsocial hours compensation

and others

Also, please could people resist in thinking Social Care is only for the elderly and care homes, for it is not although the elderly may be, currently the majority. For social care is there for anyone, or should be, who needs it, be they children or adults and it will cover Home Care, Respite, Supported Living, Hospices, etc.

The Government should be funding Local Authorities to enable them to fund care workers salaries to £14 per hour as well as bring the Government Grants back to at least pre 2010 levels for other council spending. This would then ensure that Local Governments could provide services more fitting to the 21st Century rather than the 18th/19th century.

This all needs to be addressed immediately for by the promise of the end of the year could well be too late or is that what the Government is really wishing for, as by that time many unnecessary deaths could have occurred.

During all this Government dithering, it is causing more demands on NHS resources at a time when the NHS is still dealing with COVID and the lengthening waiting lists due to the many deferred instances for people requiring non-COVID procedures as well as all the increasing demands due to long COVID ailments and conditions.



Source: Care workers in England leaving for Amazon and other better-paid jobs | Care workers | The Guardian

Thousands of vulnerable people held unlawfully in care homes – report | Dementia | The Guardian

So, another problem relating to social care,  but is it another problem for it is relating to an existing problem and that is the insufficiencies in Social Care.

For in Social Care there is a capacity problem, in that there are insufficient care workers to provide care to all the persons in need of care in the location they wish to be in.

Many of these persons placed in care homes would wish to stay in their own homes, but to do that more care workers would be required in home care.

Also many of these persons in need of care will need 24/7 care, but there are insufficient care worker to provide the minimum care of, say, visits of 15 minutes to 1 hour. Then there is the question of good quality care, which is far from consistent.

But the lack of care workers is but one of the problems, the main being insufficient funding to provide all the care which is needed.

However, if there was a miracle and a Government came that was prepared to fund social care sufficiently, it would not be able to do so.

This being because when Social Workers do Assessments of Need they tend to only record needs which they feel their Local Authorities (LAs) will fund.

Unfortunately Social Care has never been sufficiently funded, due to this current and previous Governments not willing to fund social care sufficiently. With the 10 years of austerity cuts and now the additional costs relating to COVID-19, this insufficiency is even more serious, which could lead to social care fail for everyone.

When this occurs, even more pressured will be placed on health care, which is already under great pressures.

Yes, this current Government has provided some funding to cover some of the costs relating to COVID-19 costs, but nowhere to the extent required.

An immediate amount of £12 billion needs to be provided, but this will only return the funding to 2010 levels, which has previously been stated was insufficient.

As  this should be monitored by the Care Quality Commission (CQC) and(LAs), but again there is an insufficiency of funding for this to be done fully.

So, Social Care is in a very serious crisis, which led me to create the petition, Solve the crisis in Social Care, https://you.38degrees.org.uk/petitions/solve-the-crisis-in-social-care.

Some of the issues raised in the petition were mentioned on Boxing day in a Sky News report, Social Care – The Other Health Crisis, https://news.sky.com/video/social-care-the-other-health-crisis-12172633, regarding an investigation they have done into the crisis in social care.

They highlighted many of these issues and called on the Government to abide by the promise made by Boris Johnson in 2019 in his election winning speech outside 10 Downing Street, one promise that is still outstanding.

Unfortunately Social Care is not well thought of by many persons not in need of Social Care, that is until they do need it. Much of this is down to the Media in how they report on care and the attitudes of Governments, both now and previously and this is also reflected in how benefit claimants are treated.

This all has to change and change now.

Supporting the petition could be a start.

Source: Thousands of vulnerable people held unlawfully in care homes – report | Dementia | The Guardian

Webcams in nursing home rooms may deter elder abuse – but are they ethical? : The Conversation

Mary Ann Papp’s daughter Lisa was worried about her 75-year-old mother.

A foot infection seemed to be going untreated, leading Lisa to fear that her mother’s nursing home wasn’t providing proper care.

So Lisa did what any concerned child might: She bought a US$199 webcam from Target and put it in her mother’s room.

But she found that nursing home staff kept pointing the camera away from Mary Ann’s bed or unplugging it. Eventually, Lisa bolted it to a piece of furniture and brought a formal complaint against the facility.

In May 2017, the Minnesota Department of Health decided in the Papp family’s favor: The nursing home had to allow a camera in Mary Ann’s room.


Source: Webcams in nursing home rooms may deter elder abuse – but are they ethical? : The Conversation

Local authorities failing to meet dementia care targets | Care Industry News

Today, Healthwatch England has published new data showing that overstretched councils across England are struggling to meet key legal duties in social care services for people with dementia.

The Care Act, which came into force in April 2015, says that councils must ensure that their social care services are responsive to people’s specific needs. To do this, they must review people’s care plans at least once a year.

The new figures, collected under the Freedom of Information Act, show that councils are falling short of this duty and that people with dementia are worst affected.

We asked the 152 councils with social care responsibilities in England questions about reviews and reassessments for people with dementia. 97 councils provided the following information:

  • Only 45% of people with dementia who use social care got a care review in 2017/18. NHS Digital report that the figure for all care users is 51%.
  • One-quarter of people with dementia had to have an urgent, or unplanned review because an emergency or sudden change of circumstance meant their support needs had changed.

When a review finds that someone’s needs have changed significantly, it should trigger a full reassessment of their needs. We found that:

  • 65% of completed reviews led to a full reassessment.
  • Over half (57%) of reassessments resulted in no change to the person’s care.
  • 8% of reassessments led to a decrease in funding.
  • The remaining 34% saw an increase in funding.

Each person’s experience of dementia is unique, symptoms affect everyone differently. Often people’s condition can deteriorate quickly or fluctuate rapidly. If reviews are not in place, people with dementia will not get the care they need, often friends and family will have to step in to pick up the pieces that formal social care cannot.

2017/18 one third of people who use dementia support services got no review at all.


Source: Local authorities failing to meet dementia care targets | Care Industry News

Identifying and assessing dementia in adults with learning disabilities : Community Care

The life expectancy of people with learning disabilities, and particularly people with Down’s syndrome, has increased substantially over the past 80 years. In the 1930s the average life expectancy for people with Down’s syndrome was 9.9 years for males and 12 years for females (British Psychological Society, 2015).

Data from NHS Digital (2019) showed that the average life expectancy of people with learning disabilities in general is now 65 for women and 66 for men. This increased life expectancy has brought with it a significant increase in people with learning disabilities developing dementia. At present we do not know why this is the case, and more research is needed. Genetic factors may be involved, or a particular type of brain damage associated with a learning disability could be a cause.

It is, however, known why so many adults with Down’s syndrome have an increased risk of developing Alzheimer’s disease, as Down’s syndrome is a genetic disorder caused in 96% of cases by an extra copy of chromosome 21 and the gene for family history of Alzheimer’s is also on chromosome 21.

Signs and symptoms

Recognising the early signs of dementia in people with learning disabilities can be difficult and it is important for practitioners to recognise the possibility of diagnostic overshadowing – where the person’s difficulties are seen as part of their learning disabilities, rather than as the development of a separate need, such as dementia. The early signs of dementia can also be subtle and not happen every day and so can easily be missed.

People with more severe learning disabilities are often less likely to be concerned themselves that they may be developing dementia. This is because they may have less insight into the fact that they are experiencing problems. For people with mild learning disabilities, they may recognise that they are experiencing changes, but have difficulty in expressing it. In addition, support staff and families who closely support the person may not recognise subtle changes, whereas as someone who sees the person more infrequently a practitioner may be the first to notice any changes and can then raise these concerns with support staff and family.

Dementia may be very difficult to spot in people with profound and multiple disabilities because of their pre-existing limited functional abilities. If there has been no early diagnosis, practitioners will need to think about the late stage signs that may indicate the presence of dementia. These can include changes in the person’s ability to eat and drink, changes in day/night routine and/or changes in recognition.


Source: Identifying and assessing dementia in adults with learning disabilities : Community Care


For eleven years I pleaded with my challenging elderly father to allow a caregiver to help him with my ailing mother, but he always insisted on taking care of her himself. Every caregiver I went ahead and hired soon sighed in exasperation, “Jacqueline, I just can’t work with your father. His temper is impossible to handle and he’s not going to accept help until he’s on his knees himself.”



How do you know if someone needs to move into a care home? | Alzheimer’s Society

How do you know if someone needs to move into a care home?

Advice and things to consider when deciding whether to move a person living with dementia into full-time care.


Source: How do you know if someone needs to move into a care home? | Alzheimer’s Society