Category Archives: Support Groups

Autism is not a mental health issue, yet I was sectioned | Metro News

This is how it is and I hope in time, it will be how it was.

Yes, it is well before time that the Mental Health Act was was revised and the White Paper is a start, but not a finish. Even when, I hope the White Paper progresses to an Act, it will not be a finish for this needed to be reviewed regularly, that is until everything should be as it should be.

But time does not stay still and neither should progress, for it should always be looking to improve, but no, not ever, to regress to how it was.

Autistic and and learning disabled people need to be listened to for their eventual actions are just another method of communication and it is not their fault that others observing the communication fail to understand it.

Autistic and learning disabled people are not at fault and to some respects not the persons failing to understand the communication, but it is the system.

It is as though the system is in charge, when it should not be, for systems should be there to be challenged and not relentlessly followed.

But at times it is believed to be easier to follow than to challenge and this has to be changed, for challengers to systems should be welcomed and not be resisted.

For there needs to be a system of transparency and not of secrecy.

Secrecy leads to frustration and frustrations leads to violence, but it is the violence which is then dealt with, when it should be the secrecy.

As I have said looking to change the Mental Health Act is a start, but the main area that needs to be looked at are systems wherever these systems are. What also needs to be considered when systems are looked at is that it is not be looked at by just including the so called, experts, for we are all experts in one way or another and the best expert, ‘experts by experience‘ should be the main people to be included. These experts by experience should not be looked at as an addition to the process, but need to be an integral part of the process and be equal to any others present. They should also be there at the start of the process, well before they are any preconceived opinions formed. This is co-production in process and should be followed in all areas of change or any formation of systems.

I truly hope in the changes to the Mental Health Act that it is changed for the better and not the worse, but that will depend on how it is reviewed.

Unfortunately, it appears that, in the main, experts by experience are included on a consultation basis, when it should be on a co-production basis. For to get changes for the worse and not better for the persons to whom the system will be imposed on, will only make the lives worse for them and will be costly in both money and time as well as very bad outcomes for the persons it is being imposed on to.



Source: Autism is not a mental health issue, yet I was sectioned | Metro News

Solve the Crisis in Social Care

We all have reasons for reaching out and some of mine are mentioned below

As I am very concerned about Social Care could I also introduce you to my latest Petition, ‘Solve the crisis in Social Care’.

With the Government, Social Care is the forgotten service and Yes, the Government as plenty to deal with currently, but more should have been done for Social Care well before the COVID 19 situation.

This section of care has been devoid of enough money for far too long and austerity measures only compounded this.

The starting salary for all care workers should be the Real Living Wage and not, as currently the National Living Wage or for some under 25 years The Minimum Wage.

The rate of pay is abysmal when compared to the responsibilities they undertake.

Therefore, I created the Petition ‘Solve the crisis in Social Care’,

It is not just the rate of pay, but many others including

• Conditions of Service

• Travel Expenses

• Sick Pay schemes

My own family and many other families rely on Social Care to help us look after our relatives who have major needs relating to care. We all have, over the years, done what we can to help manage these needs of our relatives, but there comes a time when the needs exceed what we ourselves can realistically deliver, hence our, now, reliance on Social Care and without it our relatives needs will not be met.

If the crisis in Social Care is not met, this will then increase the crisis in health.

Please could you consider signing the petition and then sharing it.

Lack of funding for Social Care is a major problem and this leads to

1. not only insufficient funding for all forms of Social Care

2. a lack of people wishing to come into the profession due to the abysmal rate of pay

3. partly causing a lack of quality of care being delivered in some areas and other problems

4. causing stress and exhaustion for family members providing care to their relatives, due to the lack of Social Care

Please could you see if you could show your support by signing this petition and then sharing it wherever you can.

For more information I refer you to my web page /

Please consider signing the petition and then sharing.

It goes without saying that I am greatly disappointed with the latest Budget, not even the miserly £1 or £1.5 billion promised by Boris, but unfortunately this is how it is for Social Care and those in need of Social Care.

It is what we have come to accept, but not without question and challenge and the Coronavirus Pandemic is making Social Care even more important.

Thank you


#care   #socialcare   #crisis

2.1 million will go without care by 2030 if governments fail to act : Care Industry News

Launching its manifesto for the General Election, the charity Age UK unveils shocking new research showing that the number of older people in England with some level of unmet need now stands at 1.5 million[i].

This means one in seven (15%) of the entire 65+ population are struggling without the help they depend on to carry out essential everyday tasks such as getting out of bed, going to the toilet, washing and getting dressed.

1.5 million is already an astonishingly high figure but the Charity warns that the situation could get even worse: it estimates that by 2030 there could be 2.1 million[ii] older people who don’t get the care and support they need, if the current approach to funding and providing care remains as it is today.

In its manifesto Age UK calls on the next Government to secure the immediate future of care through investing at least £8 billion over the next two years, as others have already recommended, including the House of Lords Economic Affairs Committee whose membership includes two former Chancellors of the Exchequer.

Source: 2.1 million will go without care by 2030 if governments fail to act : Care Industry News

Humiliation for DWP after years-long Bedroom Tax bid to persecute a rape victim | Vox Political

He laughed: Remember, IDS laughed at the terror he was causing a rape victim by using the Bedroom Tax to make it too expensive for her to keep a ‘panic room’. The man thrives on terrorising others.

I said it defied belief when this story first broke.

And I said it was sickening when, hearing of the terror he was causing a rape victim by using the Bedroom Tax to make it too expensive for her to keep a ‘panic room’, Iain Duncan Smith laughed.

Well, it seems the last laugh is on him.

This is a story that began in 2014 – the DWP has been torturing a rape victim for five years.

The woman, resident in a three-bedroom property with her 11-year-old son, has been the victim of rape, assault, harassment, stalking and threats to kill at the hands of her former partner.

Her council home was fitted with a secure panic room to protect her from this violent man.

A women’s refuge charity spent thousands of pounds at her property reinforcing window frames and the front door and making the back garden more secure. A panic space was installed, with alarms linked to the police station.

Then Iain Duncan Smith’s Department for Work and Pensions imposed the bedroom tax on it, claiming it was a spare room.

The woman’s housing benefit was reduced by 14 per cent because of the bedroom tax policy.

Hers was among almost one in 20 households benefiting from similar sanctuary schemes for people at risk of severe domestic violence that have been affected by the under-occupancy penalty.

Unable to afford her rent with the added burdn of the under-occupancy charge, the woman was facing eviction when Labour raised the issue in Prime Minister’s Questions. Then-incumbent David Cameron said money was available for people in such a predicament.

And Mr Duncan Smith? He laughed about it. He thought it was funny that a woman who had been raped was being turfed out of her sanctuary against further violation.


Source: Humiliation for DWP after years-long Bedroom Tax bid to persecute a rape victim | Vox Political

Leaders give mixed reaction to extra £1.5bn for social care : Care Home Professional

The government’s social care plans have been met with a mixed reception following yesterday’s Spending Round announcement by Chancellor Sajid Javid.

Javid pledged that £1.5 billion would be provided for local councils in a bid to help “stabilise the system”, including a 2% council tax precept used to raise £5 million.

Professor Martin Green OBE, chief executive of Care England, said: “If the Chancellor had neglected social care in his Comprehensive Spending Review it would have morphed into an incomprehensive spending review as it is essential to set the books straight for social care.


Source: Leaders give mixed reaction to extra £1.5bn for social care : Care Home Professional

Schizophrenic Hallucinations and Delusions | Everyday Health

If you have schizophrenia, you may experience psychotic episodes like hallucinations and delusions, both of which can cause distress and disorientation. These symptoms can make it hard to hold a job, maintain relationships, or handle everyday tasks, according to the National Institute of Mental Health (NIMH).

The first line of treatment for the symptoms of schizophrenia are antipsychotic medications. But a 2015 study in the journal Neuropsychiatric Disease and Treatment found that using positive coping strategies to deal with your symptoms can also improve your quality of life.


Source: Schizophrenic Hallucinations and Delusions | Everyday Health

Elderly & End of Life Care for Muslims in the UK report launch – FaithAction

The Muslim Council of Britain launched a report yesterday which presents findings on elderly care, end-of-life care and after-death considerations from a faith perspective, based on work undertaken by the Muslim Council of Britain and the Centre of Islamic Studies at he University of Cambridge. It identifies gaps in service delivery and proposes steps that can contribute to elderly well-being.

Key themes emerging from this report are:

  • The forecast increase in the elderly population at times of crises in adult social care, care home provision and recruitment of care workers.
  • Persisting health inequalities in society, which if left unaddressed will impact on care demands in the future.
  • Persisting health inequalities in society, which if left unaddressed will impact on care demands in the future.
  • The challenges facing individuals in planning for care and related financial issues.

To read the report, please visit


Source: Elderly & End of Life Care for Muslims in the UK report launch – FaithAction

Government leak says care providers will feel the pressure of rising costs within months following no-deal Brexit | Care Industry News

According to a government leak, following a no-deal Brexit, UK care providers will begin to feel the pressure of rising costs within two months.

The leaked documents named Operation Yellowhammer; surmises that Britain faces shortages of fuel, food and medicine.

The documents marked ‘Officially sensitive’ and requiring security clearance point out that the assessments are not worst-case scenarios, but without a trade agreement many sectors and the public as a whole will face shortages in fuels, foods and medicines.

The documents address social care and suggest that after October 31st, following a no-deal Brexit, rising costs will affect the sector and result in extended delays in medicines as three-quarters of the UK’s drugs enter the UK via the EU.

The document comments; that rising costs will hit social care with small providers impacted within 2-3 months and larger providers within 4-6 months.

Notably, it does not address people cared for in their own homes.

The documents do not mention the many thousands of elderly UK citizens already living in care homes or hospitalised, across the EU whom; following a no-deal and the cancelling of ‘Freedom of movement’ on November 1st, will almost certainly be forced to return to the UK

The documents also suggest that many businesses throughout the UK are not prepared and have not accessed advice via various government websites.

The Independent Care Group (ICG), said this document provided yet more evidence of the urgent need to tackle the social care crisis immediately.

“The Group’s Chair, Mike Padgham, said: “Social care is already in crisis with 1.4m people living without the care they need and providers failing. This latest
document about the time after a no-deal Brexit warns, potentially, of even worse to come.


Source: Government leak says care providers will feel the pressure of rising costs within months following no-deal Brexit | Care Industry News

Prime Minister Boris Johnson vows to fix the social care crisis : Care Home Professional

Boris Johnson pledged to fix the social care crisis in his first speech after becoming Prime Minister yesterday.

Speaking outside Downing Street, the Prime Minister included social care among a string of domestic pledges.

He said: “My job is to protect you or your parents or grandparents from the fear of having to sell your home to pay for the cost of care.


Source: Prime Minister Boris Johnson vows to fix the social care crisis : Care Home Professional

Whose responsibility is adult social care? Is it the family? Is it the state? | Care Industry News

Whose responsibility is the care of older adults? Is it the family? Is it the state? Is it the older person herself? How should we respond ethically to the needs of an increasing older population with fewer younger people available to deliver care?

These and other related questions were the focus of a three-day research meeting at the University of Surrey. The meeting is part of an international networking project funded by the Wellcome Trust and is led by Professor Ann Gallagher at the University of Surrey and Dr Michael Dunn at the University of Oxford in collaboration with Professor Yonghui Ma, Professor Zhaoxu Xu and Professor Ya Fang from Xiamen University, China.

The research meeting focussed on case studies developed by the team relating to residential and home care in China and the UK. The case studies focused on ethical challenges for older people and families in negotiating roles and responsibilities. Commentaries were invited from experts across 11 different countries including from the UK, Hong Kong, Singapore, Canada and the USA. During the three-day networking meeting, experts discussed the case studies and broader issues of philosophy, policy and practice as they concern the future of caregiving for older adults in different parts of the world.

Day two was devoted to public engagement, with local caregivers and family members joining with the group of international experts to share their perspectives. The international group had the opportunity to learn about one of the best places to age in the UK with a visit to historic Whiteley Village. The day ended with an innovative immersive theatre performance by the Entelechy Arts Company. This performance enabled international experts and the public to engage with the question ‘Whose responsibility is the care of isolated elders?’. The company is recognised for its pioneering programmes of work supporting the creative and social inclusion of isolated older people.


Source: Whose responsibility is adult social care? Is it the family? Is it the state? | Care Industry News