Category Archives: Intellectual Disabilities

It’s not just SEND teacher training that’s needed. How we educate all children is broken – Special Needs Jungle

Teaching is just one of many systems which are out dated and lacking resources and investment, but this is not new as all are not fit for the 21st century, some more than others.

As with all systems for assume the ‘one fits all’ principle, which is so outdated and really was never correct. For everyone of us is an individual , but individuals are not recognised in any of the current systems as to have adaptable systems costs and we are told money is not available, but is that even true. For when finance is required for any pet project it is found. More than likely by removing finance which is desperately needed by its current project, but is deemed to be more importantly needed by the pet project.

Is the pet project really that important or is it just the favoured project of that moment in time and tomorrow a different pet project could arise on a political whim. That is not the way to proceed, but that is how it has been for many years, but just because it is so for many years does not make it correct.

Education needs to reform, but let the experts decide being those on the ground and not just teachers, but also parents and maybe even some children. We all need to work together and not just for the good of the many, but for the good of all.

In the interests of costs, schools have been allowed to become too large, as have class sizes, but is cost the only reason for the supply of teachers and teaching assistants are also in short supply.

The education of children has been tweaked in many ways over the years and not all tweaks have been really required if we consider quality, children’s needs and many other factors.

Also it is not just SEND which is underfunded, but the whole education programme and is the programme also correct.

Many factors are not right and these cause many problems including

teacher satisfaction

children being left behind

children not being understood

disillusioned children

creating problems not just at school but also at homes

and much more.

Will it be put right, I fear not and the rolling ball of insufficiency will continue.

Source: It’s not just SEND teacher training that’s needed. How we educate all children is broken – Special Needs Jungle

Tax rise for 25 million to pay for social care

While any rises in taxes is never good news, Social Care needs to be a special case, for it has been in crisis for far to long and is also affecting more calls on the NHS at a time when everything needs to be done to save the NHS also.

For Social Care is a care service which is just as important as the NHS, if not even more so and with the effects of Long COVID will be for many more years to come.

Social Care has for many years not been seen by many as a deserving service, especially in Governments and the media, who both have gone out of their way to promote Social Care in a very bad light and those you have to call upon Social Care.

Anyone of us could through no fault of our own have cause to access Social Care, but many will never have to, but more and more persons are now having no choice but to do so.

But it is not just about persons accessing Social Care, as people working in Social Care also need to be considered for, they too have not been seriously considered.

Be it

  1. the abysmal salary they receive
  2. their working conditions, unsocial hours, many various venues
  3. lack of travel expenses
  4. lack of some holiday pay
  5. no sickness benefits
  6. lack of persons willing to come into the profession, causing those that do to work more hours than they should for their own health and wellbeing
  7. no benefits for working official Bank Holidays
  8. Government restrictions on who can come into the UK to work in Social Care, to supplement the UK workforce, these restrictions are not great for persons willing to come to the UK to work. Especially when working in Social Care is classed as unskilled work, which it is certainly not. You need to have caring values, be very responsible, willing to work in various situations, in many instances on your own. Be receptive to the needs and choices of the person for whom they are caring for. Be respective to a person’s home and their possessions.
  9. And many others

The whole Government attitude to Social Care needs to be improved. As does the belief that Social Care is only for the elderly, for it is certainly not. While the elderly may, currently, be the majority needing care, care is also required for both children and adults of all ages and varying conditions, be it mental health, physical disabilities, Learning disabilities and Autism, poor health and many others.

These changes and many others need to be done, and done urgently for by not doing so will and is bring forward many Safeguarding issues.

Source: Tax rise for 25 million to pay for social care

Blind Couple Refused Entry By Leicester Square Restaurants

How can this be in this day and age, for it has been illegal to refuse entry for years, so is this ignorance of the law or just outright abuse and discrimination. For laws have and are in force as follows Disability Discrimination Act 1995, Disability Discrimination Act 2005, and Equality Act 2010.

Well who is going to find out and no matter what the reason who will face prosecution, for no matter who it was prosecutions need to be made. Otherwise this will continue for ever more.

Also, not just prosecutions of each establishment, but all who where involved in this despicable act or acts.

Ignorance should not be a plausible defence and it needs to be a criminal prosecution and not a civil action. Fort the guilty it should be imprisonment and not just a paltry fine or suspended sentence.

Disabled people have a right to live their lives and not be subjected to any forms of abuse or discrimination, be it direct or indirect abuse and/or discrimination.

Same Difference

Blind husband and wife Siobhan Meade and Sean Dilley were hoping to enjoy a meal in central London’s Leicester Square.

But they were left feeling “crushed” when they were turned away by two eateries, who claimed they could not bring their guide dogs in – despite it being illegal under the Equality Act.

Siobhan, who works for the Guide Dogs for the Blind Association, said the experience left her feeling like a “second-class citizen”.

The two restaurants, Jollibee and Little Italy, have both since apologised to Siobhan and Sean, who is a BBC journalist.

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People with learning disabilities ‘failed again’ as CQC closes unit over abuse | Nursing Times

Yet again persons with Learning Disabilities and/or Autism are being let down by the system, a system that due to many years of underfunding is far from ‘fit for purpose’. But underfunding should not be used as an excuse for cruelty and abuse, for this is purely down to management and the standard of carers employed.

However, as the article states if Social Care was sufficiently funded persons could live in their own communities and not be locked away in these , so called, hospitals, for that is a disgrace for they are not hospitals, but more like . But, it is also wrong to say prisons, for prisons would not be allowed to cause suffering in these ways.

What needs to occur is for this Government make good their promises and promises of many previous Governments to once and for all put Social Care on a very secure financial footing. For it is my belief that Social Care has never been sufficiently funded, but 10 years of austerity cuts and then going on 2 years of COVID have caused many more problems for social care, when one would have expected it could not get worse. But much worse is has become, due to many years of Government inactivity with regards to social care.

Unfortunately social care does not receive a good press, for many in the population feel that spending on social care is a waste of money, just because they fail to see the need for social care. This is compounded by government actions in many areas, including the benefits system and how the majority of the media view social care and the persons in need of social care. That is, until a scandal is uncovered, but it is the lead to the scandal which is also of concern. So decrying social care at every opportunity leads to the scandals in the first place.

A ‘White Paper’ on Social care has been promised by many UK governments, but to date not one has delivered. Even when a White Paper is published it may not be the solution, for it will be coming from a Government which has shown many times it cares nothing for social care and the persons who are in need of receiving social care.

So the attitudes of many within the UK, or just England have to improve. For until they do the Human Rights of Persons with Learning Disabilities and/or Autism will not be adhered to.

 

Source: People with learning disabilities ‘failed again’ as CQC closes unit over abuse | Nursing Times

No government hoping to level up can ignore the social care crisis harming England’s children | Anne Longfield | The Guardian

All that is said, is so sadly true, for in the current Children’s Social Care there is no hope of any improvement, especially long-term and even in most instances short-term.

But refinancing is only one of the problems for there are may others.

One is no matter what is done, even doing it all, eventually these children will be doomed to failure yet again, for it is not just children’s social Care that is in a dire state, for adult social care is in a similar position, if not even worse. Yes, this is effecting the elderly, but not only the elderly, but all adults in social care, as social care in every direction is not ‘fit for purpose’ and has not been for far to many years.

This Government and all previous Governments have been guilty of failure no matter what colour of the Government for no party has taken the challenge of social care onboard.

Even tough the situations are very dire, this Government appears to have no desire to solve the problems, only to ‘kick the can’ further down the road. Well this road has to have a reverse of traffic and the reform of all social care should be of the highest priority, if needs be over and above, even COVID. Or at least on an equal par.

Source: No government hoping to level up can ignore the social care crisis harming England’s children | Anne Longfield | The Guardian

NHS drafted plans to ‘deny care to elderly and offer end of life pathways’ in a pandemic – Mirror Online

This is disgraceful and disgusting, but it is what I would expect from this Government, in fact any Government.

I don’t trust any politicians, no matter what colour Party they come from.

Yes, Labour say they would be against this now, but, if they were in power would they do as they say. We will never know until it is too late.

For it is Government policy to govern for the whole and not the few and as there are more who are under 70 and don’t have learning disabilities and/or autism I can see it being policy.

Even, if there is a law against it the Government of the day only need to declare a ‘National emergency’ and usual parliament debate will not take place.

We would have to rely on the honesty and integrity of the NHS and Care staff to see that right came through.

 

Source: NHS drafted plans to ‘deny care to elderly and offer end of life pathways’ in a pandemic – Mirror Online

After scandals like Winterbourne View, why is basic decency still remarkable? | Sara Ryan | The Guardian

It is a continual shame on our Society that these abuses for persons with learning (Intellectual) disabilities and/or Autism are still occurring, not just occasion ally, but with regularity.

What ‘have we learned’, or should it be ‘why have we not learned’ for the immortal phrase ‘Lessons will be Learned’, which is always stated but never accomplished or is it even, never started.

For to learn there has to be a wish to do so, not just for a few but all.

It should be that everyone receives good quality care, but they do not. Some put forward the lack of a reasonable pay structure, but would increasing pay for carers really make any difference, for good quality and consistent care should be there no matter how much a person earns.

Not to say that carers should not be receiving a reasonable salary for the work that they do, for they should and the starting point should be the Real Living Wage and not the National Living Wage or even less if the carer is below age 23.

Unfortunately it is not just the Care and Treatment Centres that abuses occur for they could occur in any care setting, be it care homes, home care, supported living, respite, etc.

Is CQC, (Care Quality Commission) up to checking on the quality of care, well that is the question, for they should be, but I feel so much time is spent checking on records and insufficient on actual care delivery. I say this for anything can be written in a record, but actual care delivery is there for all to see.

It is so true that care is nowhere sufficiently funded and the total blame can’t be placed on Local Authorities for they are funded by the Government to a large extent and this and previous Governments have failed completely to fund Social Care anywhere near sufficiently.

Again it is true that the Government do not directly fund Social Care, but forward a grant to local authorities (LAs) for their complete areas of responsibilities and  LAS then split the grant over all their responsibilities, but it is the Grants that woefully insufficient. Not only tat but for 10 years LAs were subjected to Austerity Cuts in order to make savings, where savings could not realistically be made, so cuts were the order of the day.

Not only that, but then there have been the additional costs due to COVID, which the Government promised to cover, which they have to some extent, but not all.

So how do I view Government promises, well with great speculation and never believe that the promises will ever be fulfilled and to some extent never even kept at all.

So will care ever be good and consistent, well I always hope so, but then we all need to keep our eyes and ears open and report without any delays when we see and/or hear that they are not being.

Safeguarding is the responsibility for everyone of us and any concerns or alerts always need to be reported.

Source: After scandals like Winterbourne View, why is basic decency still remarkable? | Sara Ryan | The Guardian

Homes not hospitals – Social work with adults

Hospitals will never be homes and should never be classes being, for hospitals are there to care for people and do all they can to ensure people recover from what ailments they have.

However, persons with learning disabilities and /or autism have conditions from which there is no recovery and therefore should never be admitted to any institution that is there under the impression that they will offer a cure.

Persons with learning disabilities and/or autism are not ill so there is never to be a recovery, what is required is for people to understand them and treat them with the respect and dignity to which they are all entitled.

Medication to keep them quite or in a composed state is never the answer, and should be illegal, but by listening to them, be calm with them and give then reassurance and more is what is required.

Giving medication is this manner is never the answer and is a misuse of medication Known as STOMP (Stopping over medication of people)

What is the answer is building of suitable accommodations in the community, either with care being provided or not. That is assuming that the care being provided is of good and sufficient quality and quantity.

But the authorities feel the easy answer is to imprison persons with learning disabilities and/or autism in these so called hospitals, but effectively they are prisons, for once a person is in one of these institutions it is very difficult to be discharged. This is because the conditions and treatments in these institutions are geared to make persons worse, if they do, so called, actions, which the institutions do not care for they will be given medication and also be in seclusion.

The actions that are shown are usually because the person has not been listened to and the action is another form of communication. If the persons caring for them had understood and done what was required, it would be more than likely that the actions to which the carers are objecting to would never have occurred.

A greater understanding of learning disability and autism is required by everyone in an authoritative organisation and medication and seclusion should never be required.

 

Source: Homes not hospitals – Social work with adults

People with learning disabilities in England ‘have eight times Covid death rate’ | Learning disability | The Guardian

Yes, it is true that persons with disabilities due have a greater degree of dying than someone without a disability and that this is generally 20 times more as been proved by research from Bristol University on the LeDeR Programme, which has been in force since 2016.

Then COVID is showing there is also a 8 times greater degree, but although the Department of Health and Social Care (DHSC) new about the 20 times, through the research of the LeDeR programme which reports to DHSC, they did not immediately include adults with disabilities as a priority on the Vaccine programme and when they did it was only for persons with Downs Syndrome.

Is this proof that this Government does not view persons with disabilities as of any importance, but to just ignore them, as though by ignoring them they will go away. One would hope not, but the vaccine programme is only one instance others being, include the Benefits System, the inaction on Social Care and many others.

But, the media has also some blame on this for they usually only depict disabled people with negativity and the general view of the UK population is also similar, with many viewing disabled people as ‘scroungers’, of which they are not. They just need a little more to be treated equally and then they only live a ‘reasonable’, whatever, that may be.

 

Source: People with learning disabilities in England ‘have eight times Covid death rate’ | Learning disability | The Guardian

A ‘national shame’: MPs demand an end to some autistic people being detained for years | UK News | Sky News

I do not usually agree with MPS, but in this instance I agree wholeheartedly with them for hospitals ate supposed to be there to cure persons with illnesses and autism and learning disabilities (LD) are not illnesses, but conditions and there is no cure. To give the impression there is should be made illegal and not, as currently incorporated into Law. Hospitals are not supposed to be prisons for you always have a right to leave an hospital, even if it is not recommended, unless it is deemed you do not have the capacity to do so. In which case, a ‘Best Interest Advisor is appointed, under the terms of DoLS (Deprivation of Liberty Safeguards) in the Mental Health Act 1983 as amended in Mental Capacity Act 2005.

It is totally wrong to place persons with autism and also learning disabilities in any form of captivity as not only is this restricting their freedom, but the whole act of restriction makes their condition worse, and it is this worsening, which is usually used to justify their continued admission.

They are not being helped, but are in effect being kept out of Society by misguided intentions and making them have a worsening quality of life, so I agree the Institutions need to be closed.

But by the reliance on these institutions nothing is being done to create much more suitable accommodations, where their freedoms are respected with appropriate care being offered.

This will require a whole new process, much more funding and employment and training of staff. Also a re-education of many Health, Justice, Social Care and Legal staff and organisations. In fact, in reality the Care and Treatment facilities and not that much different to the Mental health institutions they were meant to replace. In these many of the persons with Mental health issues have been discharged into the community but not that many LD and autism have.

It is a disgrace and should be illegal that the required funding for improvements are not being funded. But, to some extent this is all connected with the complete in ability to fund Social Care and not fully fund health and mental health, due to political motives.

All these areas of health and care have to be fully funded, completely sufficient training be made available and for staffing levels to be filled 100%, if not we can’t say the UK is provided first class care to everyone.

If a realignment of capital spending is required then so be it for only then could we say the UK is working to provide good quality life for all of its population and not just a stated few.

: A ‘national shame’: MPs demand an end to some autistic people being detained for years | UK News | Sky News