Solving the crisis in Social Care

Social Care is just as important as Health Care, but does not receive the support is should do.

With this in mind please could I mention that the forthcoming Budget is an important opportunity to address the crucial issue of funding for Social Care, but will it.

Boris has promised, but will he keep his promise and even if money is made available will it be sufficient.

Boris has now mentioned it will take 5 years to get the funding, Social Care can not wait that long.

Boris needs to be told this is not good enough, so it is essential we keep the pressure on Boris and my petition ‘Solve the crisis in Social Care could be the means.

Please see below

We now have the New Year 2020.

However, if the ‘Crisis in Social Care’ is not Solved soon there will not be many more New Years for the care, required for persons in need of care, to be provided by Local Authorities due to their lack of funding. This will then have a much greater impact on health care provision, which is itself in crisis.

I have therefore created my latest petition, please follow the link

https://you.38degrees.org.uk/petitions/solve-the-crisis-in-social-care

For more information please follow the link

https://www.dropbox.com/s/w0f2skyxy37udqb/Solve%20the%20crisis%20in%20Social%20Care.docx?dl=0

This Petition needs You, please sign to show your support for you will not know when you or someone in your family will need social care.

Social Care in Crisis

Due to years of austerity cuts to Local Authorities, these authorities are having to spread more thinly, each year the amount of money they have all over the many areas of their responsibilities and Social Care is one of those areas.

But each year with an aging population and more persons with disabilities living longer, the people needing Social Care is increasing while the money available to help care for these needs is reducing.

In addition there is an increasing need for employed carers to provide the care the people with these needs require. But there is a shortage of people wishing to come into care and why is this?

The rate of pay within the care industry is abysmal for most employed carers receive a wage based on the *National Living Wage, currently £7.83, which will increase to £8.21 on the first of April 2019.

While the Living Wage is £9.00.

Being an employed carer is more than, cleansing, washing, dressing and meal preparation, as they are, in many instances, one of the few people that the people with care needs see.

Also there could be instances where the employed carer needs to deal with financial responsibilities, provide emotional support, manage prescriptions and administer medication, monitor Safeguarding and many more areas of responsibility and paying just the National Living Wage is not sufficient to cover all these responsibilities.

It is therefore, that the Living Wage would be more near a level to pay, but Local Authorities do not have the finance to pay this, currently and therefore this current Government needs to take this on board and increase the funding to Local Authorities.

With this in mind, FLASh (Families Lobbying and Advising Sheffield) have created an EPetition, Pay All Employed Carers the Living Wage.

Please see the following

flash logo.jpg 2

 

FLASh (Families Lobbying & Advising Sheffield) are concerned about the continuance of Social Care within the UK.

The Care Industry is in a state of crisis as there is insufficient funding from Local Authorities to Care Service Providers to pay the carers they employ a wage of sufficient amount for the work these carers are required to provide which matches the responsibilities they have to undertake to the persons to whom they are providing care to.

These Local Authorities have, for many years, under this current Tory Government, been subjected to austerity cuts to the funding they receive from this Government, which impacts on the money these authorities have available to provide this funding.

Therefore, FLASh have created an EPetition ‘Pay all employed Carers the Living Wage.

Please view this EPetition and seriously consider signing the EPetition and then verify your signature though the link provided in the email you will receive. Until your signature is verified your signature will not be activated.

The EPetition ‘Pay all employed Carers the Living Wage’ can be accessed here.

Should you be unable to view the EPetition, please copy and paste the following; https://petition.parliament.uk/petitions/236151 into your browser.

Once you have verified your signature please could you share this EPetition with your colleagues, friends and any other connections.

Please also forward to your MP and your Local Councillors.

Thank you for your support.

 

If you wish to know more about FLASh a link to their website is here. If you are a family carer in Sheffield for someone with a Learning Disability or Autism and you wish to become a member of FLASh and/or attend the monthly meetings please advise your email address to flashld575@gmail.com

Chris Sterry, Vice-chair of FLASh issues his own Newsletter, on at least a monthly basis. To receive this Newsletter on a regular basis please email Chris on ldcarersbuttygroup@gmail.com and a copy of the Newsletter can be accessed here.

 

 

 

* Contains public sector information licensed under the Open Government Licence v3.0.

How Carer Voice was Started

3 Family Carers of relatives with Learning Disabilities and/or Autism (Chris Sterry, Judith Gwynn and Kate Chapman) started working together with a PHd student (Rachael A Black) at the University of Sheffield (Department of Human Communication Sciences) using the framework of Co-production. This was initially to provide research for Rachael’s thesis required for her PHd, but also to have a meaningful outcome for LD Carers within Sheffield, UK

At the start of this co-production Rachael enquired through Sheffield Mencap & Gateway for carers of persons with Learning Disabilities to work with her on her PHd project. During the last 18 months we have had regular meetings at the University of Sheffield on how we would proceed with this project and what our initial outcomes would be. Initially through general discussions, which Rachael was recording, it became clear that the recurring situations was around carers communications with the range of Service Providers. Within the context of Service Providers it included Sheffield Adult Social Care through Sheffield City Council, various health providers ( being GPs, Sheffield Teaching Hospitals, Community Health, and many other health areas) together with the independent Care Providers including charities, voluntary and private independent providers.

So that we were not restricted around our own views we decided to create 2 surveys, 1 to be completed by LD carers reflecting on their interactions with Service Providers and the other survey to be completed by Service Providers reflecting on their interactions with LD Carers. The surveys were created on Survey Monkey and during their creation we had a number of meeting to discuss how these were to be formed, the number of questions to be included and the specific questions. When we were all satisfied with both surveys they went live on Survey Monkey and electronic links were disseminated through our various range of contacts within Sheffield, UK.

We also discussed how we wished to to use the information from these surveys in addition to the original outcome for Rachael’s thesis. and decided we would wish to do this in a form of a presentation. We looked at possible dates and venues and obtained costings and also viewed each venue and then using co-production decided which venue to book and how we would advertise the event and provide a means for LD Carers and Service Providers to book to attend the event, which we did through Eventbrite and agreed on a format for a flyer and a website (Carer Voice) and the event title being Carer Voice Working Together.

Working Together Event Presentation 2017

 

Carer Voice ‘Working Together’, The Presenters from left to right, Chris Sterry, Judith Gwynn, Rachael A Black and Kate Chapman
Carer Voice ‘Working Together’, Presenter Rachael A Black Stating the Principles of Co-production
Carer Voice ‘Working Together’ Carers and Service Providers working together
Carer Voice ‘Working Together’ Presenter Judith Gwynn answering questions at the end of the Presentation
Carer Voice ‘Working Together’ Presenter Kate Chapman answering questions

Carer Voice Final Notes

Thank you for coming today and now you have seen the presentation and been involved in the workshops in which carers and service providers have worked together. This is how it should be for we are all here for the same reason, to ensure vulnerable persons, be they be our relatives or not, have provision to ensure their needs are met and they can then led their own lives.

Communication is but one key, but an extremely important key and without it all that is there can fail.

With this in mind I facilitate a support group LD Carers Butty Group, also known as Central group or Butty Group, where there is also a website LD Carers Butty Group and a mailing/distribution list. There are other support groups and details of these can be obtained from the Carers Centre and from Cathy and Kirsty from Sheffield Mencap & Gateway (Sharing Caring Project).

If you wish to be included in the mailing/distribution list please advise your email address. While this was produced with carers in mind, it does not mean that service providers cannot be included. Information sent will include areas relating to disability both local and national as well as notes for the support meetings.

Lunch is now ready and there are some leaflets from a selection of providers please view and take away and continue to network throughout lunch.

Do not forget to put on a post it the message you are taking away from this event and an evaluation form will be emailed to you, please return with your comments.

Our thanks to

University of Sheffield, Department of Human Communication Sciences for funding the event

Sheffield Central Fire Station for the room

Healthwatch Sheffield for the pens

Carer Voice ‘Working Together’, Chris Sterry giving the closing statement

 

After the Carer Voice : Working Together event we sent the following email to everyone who attended the event and also to those persons who could not attend but did express an interest in the event.

“We just wanted to get in touch to give you an update on the work we are doing following the Working Together Event in October.

 As a group we have met once to go through the feedback and will be meeting again in December. Where we will start drafting some standards and guidelines for communication between family carers and providers of service based on the information you gave us.  

 In early 2018 we will email these to you for your feedback. If you would not like to receive these emails then please do let me know and I will remove your name form the mailing list.

 We are also planning to pull together a small working group in the New Year to ensure the standards are accessible and practical. If you would be interested in being in this group, please do let us know. It will consist of 2 to 3 meetings at the University of Sheffield.

 Please also find attached some information about care workers in the independent and charity sector and the flu vaccine which we hope will be of use to you.

If you would be interested in receiving a copy of the presentation we gave on the day please do get in touch and I will send this to you.

Many thanks

Rachael and Carer Voice”

Flu Vaccine for Care Workers

Supporting People with Learning Disabilities get Flu Injection

 

We have now met in December and have started drafting some standards and guidelines for communication between family carers and providers of services based on the information given to us during the Carer Voice : Working Together event.

The draft documents were produced.

So we could enage with service providers we held 3 meetings.

Intialy we met with  representatives of Sheffield Adult Social Carer and Sheffield City Council Commissioning who viewed the documents and made some comments regarding some minor alterations.

The second meeting was with some service care providers who also made some contructive comments.

The final meeting was with representatives of Sheffield Clinical Commissioning Group, who also welcomed the documents and wished to use these in conjunction the their ‘For Pete’s Sake’ campaign’ and offered us a 15 minute presentation slot in the Assistive Technology event on the 28 June 2018.

Chris gave the presentation at the event and it was very appreciated by the atendees.

The presentation can be viewed  here

 

 

Britain’s Got Talent: Alesha Dixon BLM necklace prompts 1,900 complaints – BBC News

Ofcom has received more than 1,900 complaints over an episode of Britain’s Got Talent in which Alesha Dixon wore a Black Lives Matter necklace. Saturday’s episode saw Dixon, who is a judge on the show

 

Source: Britain’s Got Talent: Alesha Dixon BLM necklace prompts 1,900 complaints – BBC News

Chief social workers say suspension of Care Act duties should continue through winter | Community Care

The chief social workers have advised ministers to keep legislation suspending certain Care Act 2014 duties in place through the winter to ensure local authorities are able to meet urgent and acute needs.

The advice from Fran Leddra and Mark Harvey – the joint interim chief social workers – was set out in the government’s adult social care winter plan, published last week. This indicates that the government will keep the so-called Care Act easements, legislated for under the Coronavirus Act 2020, in place until March next year, despite no councils currently making use of them.

The House of Commons will get a vote on whether or not to continue them when the act comes up for review next month, though there is little chance of the government being defeated given its 80-seat majority.

 

Source: Chief social workers say suspension of Care Act duties should continue through winter | Community Care

 

 

SURVEY: Does your child have all their SEND provision back? What’s your family’s experience been this term? – Special Needs Jungle

Government guidance for the autumn school and college term 2020 is “everyone in”. Only, that’s not the reality for many children and young people with SEND. As we’ve already covered here for those with complex disabilities, schools are confused over guidance, unable to afford the relevant PPE or left without staff who have the right training. So their answer is, to tell those children they have to stay at home.

And it’s not just the medically complex. We’ve been hearing stories that disabled children are being told they can’t return full time or only come part-time because they can’t social distance, or because their teaching assistant isn’t available, or they have a staff shortage. Or the child can’t get there because transport isn’t available for some reason. Some parents feel they have no option but to home educate.

One thing is for sure – this is only happening to children with SEND.

To be fair, we’ve heard from some families whose children’s schools and colleges have made huge efforts to welcome every child back. So it can be, and is being, done. If you are such a school, please share what you’ve done in an email to us – we’d love to shout about it to continue our exemplary practice series.

Autumn survey: back to full SEND education?

 

Source: SURVEY: Does your child have all their SEND provision back? What’s your family’s experience been this term? – Special Needs Jungle

Coronavirus guidance: What mainstream settings should do to ensure the inclusion of disabled children – Special Needs Jungle

Trying to keep up with the government’s latest coronavirus education guidance can seem like a full-time occupation. There is guidance for schools for re-opening and separate guidance for specialist settings. There’s also guidance for safety and much more.

Mainstream schools may, reasonably, think the specialist settings guidance doesn’t apply to them. But they would be wrong. Because the government has not so helpfully, put all the information for children with SEND in here, seemingly forgetting that most children with special educational needs are indeed in mainstream schools.

This may be one of the reasons why many families are being told their children either cannot return or are being offered a part-time timetable. Both of these things are unlawful. Just because a disabled child may find social distancing hard, or because their behaviour may not fit your COVID-amended policies, doesn’t mean they should be excluded. Because that’s what it is; an unlawful exclusion.

SEND education consultant, Lorraine Petersen, who is a former CEO of nasen, has written for us today to explain what’s missing from the mainstream guidance and why schools need to also read the specialist document to be able to support all the children in their school.

 

Source: Coronavirus guidance: What mainstream settings should do to ensure the inclusion of disabled children – Special Needs Jungle

ABSENCE OF VITAL RESPITE CARE IS POTENTIAL DEATH SENTENCE FOR FAMILY CARERS, SAYS REVITALISE CEO JAN TREGELLES

Yet another whip to use on persons with disabilities in the UK for when it comes to it this current Tory Government will go to any lengths to make the lives of persons with disabilities and their unpaid family carers, not only unbearable, but to create the greatest possible strain on their respective lives.

The stresses were already so great on unpaid carers as though the £130 billion they save the UK is not worth mentioning.

Until all persons with disabilities and their respective unpaid family carers are removed from life, this Tory Government will not be satisfied.

For this Government have done all that is possible and some that you would have thought was impossible, to make life so unbearable for persons with disabilities that early death is the only possible outcome.

This Government and the buffoon Boris are a perfect example of the ‘3 Wise Monkeys’, https://en.wikipedia.org/wiki/Three_wise_monkeys.

They see death as the best way to reduce the costs of welfare benefits and the reliance on Social Care and the increased costs to the NHS.

For whatever other explanation is there for the total disregard this Government and many previous Governments have for the continuation of Social care within the UK.

It was being run on a ‘shoe string’ well before the austerity cuts imposed on Local Authorities, then the 10 long years of austerity, followed by COVID-19 and the eventual Coronavirus Act 2020,https://www.legislation.gov.uk/ukpga/2020/7/contents/enacted.

The temporary suspension of the regulations of the Care Act 2014 and various legislation relating to Children, meaning Local Authorities could not be deemed responsible for lack of ‘Duty of Care’ to those in need of care, when the need of care was increasing considerably.

If it has not resulted in sufficient deaths what will this Government put in force next, would they even enforce ‘compulsory Euthanasia’.

I would not put anything on this Government enacting.

Bringing public attention to all of this is a matter of priority and supporting my petition, Solve the crisis in Social Care’, https://you.38degrees.org.uk/petitions/solve-the-crisis-in-social-care, may be a start

You can see more information at https://1drv.ms/w/s!Aq2MsYduiazgnyRlynJVialZTGY8?e=8IrvJG, but this is just a small part of what is wrong with Social Care, but it should be enough to create change.

Yet another whip to use on persons with disabilities in the UK for when it comes to it this current Tory Government will go to any lengths to make the lives of persons with disabilities and their unpaid family carers, not only unbearable, but to create the greatest possible strain on their respective lives.

The stresses were already so great on unpaid carers as though the £130 billion they save the UK is not worth mentioning.

Until all persons with disabilities and their respective unpaid family carers are removed from life, this Tory Government will not be satisfied.

For this Government have done all that is possible and some that you would have thought was impossible, to make life so unbearable for persons with disabilities that early death is the only possible outcome.

This Government and the buffoon Boris are a perfect example of the ‘3 Wise Monkeys’, https://en.wikipedia.org/wiki/Three_wise_monkeys.

They see death as the best way to reduce the costs of welfare benefits and the reliance on Social Care and the increased costs to the NHS.

For whatever other explanation is there for the total disregard this Government and many previous Governments have for the continuation of Social care within the UK.

It was being run on a ‘shoe string’ well before the austerity cuts imposed on Local Authorities, then the 10 long years of austerity, followed by COVID-19 and the eventual Coronavirus Act 2020,https://www.legislation.gov.uk/ukpga/2020/7/contents/enacted.

The temporary suspension of the regulations of the Care Act 2014 and various legislation relating to Children, meaning Local Authorities could not be deemed responsible for lack of ‘Duty of Care’ to those in need of care, when the need of care was increasing considerably.

If it has not resulted in sufficient deaths what will this Government put in force next, would they even enforce ‘compulsory Euthanasia’.

I would not put anything on this Government enacting.

Bringing public attention to all of this is a matter of priority and supporting my petition, Solve the crisis in Social Care’, https://you.38degrees.org.uk/petitions/solve-the-crisis-in-social-care, may be a start

You can see more information at https://1drv.ms/w/s!Aq2MsYduiazgnyRlynJVialZTGY8?e=8IrvJG, but this is just a small part of what is wrong with Social Care, but it should be enough to create change.

 

 

Same Difference

A press release:

Government guidance is making emergency respite care impossible 

Pressures on unpaid home carers, nursing and caring for a seriously ill or disabled loved one, 24 hours a day, have become intolerable.

This is the consequence of the emergency Coronavirus Act which has allowed Local Authorities to axe their duty of care responsibilities towards the disabled and the elderly. As a result, desperate families have been stripped of valuable home and community support at a time when they need it most.

For 57 years, Revitalise has provided respite care breaks to a huge range of people. These are a vital lifeline to so many unpaid home carers and their disabled family members.

At the start of the pandemic, the Government abandoned care homes completely. Now, in trying to rectify this, they have imposed blanket 14-day isolation guidelines for anybody entering any care setting. These are indiscriminate and prohibit…

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Universal Credit increase must be made permanent and extended to legacy benefits : Welfare Weekly

 

Source: Universal Credit increase must be made permanent and extended to legacy benefits : Welfare Weekly

 

 

DWP urged to increase ‘legacy benefits’ to avoid gap in support : Welfare Weekly

The UK government has been urged to extend the £20 per week uplift to the standard allowance of Universal Credit and basic element of Working Tax Credit to avoid an ‘unfair’ gap in support during the recovery from the Covid-19 pandemic.

The SNP claim that new figures from the Scottish Parliament Information Centre (SPICe) have revealed that the decision to provide the uplift to those on so called ‘legacy benefits’ would affect almost 300,000 people in Scotland.

Leading anti-poverty charity, the Joseph Rowntree Foundation (JRF) has joined the SNP and others in calling for the £20 increase to be made permanent and extended to legacy benefits to strengthen the social security net and provide a lifeline to families struggling because of the Covid-19 pandemic.

They say that throwing the equivalent lifeline to those on legacy benefits could see 1.5 million more people across the UK, including 300,000 children, benefiting from this crucial support in 2021/22.

 

Source: DWP urged to increase ‘legacy benefits’ to avoid gap in support : Welfare Weekly

Most providers face going into red this winter without extra Covid social care funding, warns ADASS | Community Care

Social care faces a “dangerous scenario” of most care providers going into the red this winter unless the government gives councils more funding to support them manage the impact of Covid-19.

That was the warning from Association of Directors of Adult Social Services (ADASS) president James Bullion, in an appearance before the House of Commons health and social care select committee yesterday.

ADASS estimated that one-third of providers were currently making a loss because of the additional costs from Covid-19 – including personal protective equipment and covering staff sickness – and reduced income as a result of service reductions, Bullion told MPs.

This is despite councils stepping in to cover costs, making use of the £3.7bn in un-ringfenced funding allocated to authorities by government to meet the costs of the coronavirus.

 

Source: Most providers face going into red this winter without extra Covid social care funding, warns ADASS | Community Care

 

 

Covid-19 shows that the lives of people with a learning disability are still not treated as equal – The BMJ

A pandemic does not abrogate our responsibility to protect the lives and human rights of people with a learning disability, says Keri-Michѐle Lodge

The covid-19 pandemic amplifies the everyday discrimination experienced by people with a learning disability (also known as intellectual disability), yet this group remains glaringly absent from the UK government’s coronavirus strategy.

The symptoms of this neglect have been present throughout the past few months. First, the National Institute for Health and Care Excellence issued a clarification about people with a learning disability only after publishing guidance on using the Clinical Frailty Scale to identify who may be appropriate for critical care, demonstrating that this group is, at best, an afterthought. Worse still are the reports that followed of people in learning disability care homes being told they were unlikely to be prioritised for hospital care if they contracted covid-19.

Source: Covid-19 shows that the lives of people with a learning disability are still not treated as equal – The BMJ

DWP splashes £120m fighting disability benefit appeals despite record claimant success rates : Welfare Weekly

 

Source: DWP splashes £120m fighting disability benefit appeals despite record claimant success rates : Welfare Weekly